Health Big Data

Health Big Data

Virtual Institutes of Pathology of the Italian Network of IRCCS: preventing diseases, personalizing treatments, improving patients’ quality of life

 

Funding: On November 19th 2019, the Italian Ministry of Health and ACC signed an agreement, for the funding of a Joint Project involving 3 IRCCSs’ Networks – ‘Alliance against Cancer’,‘Neuroscience and Neurorehabilitation’ and ‘Cardiology’. The 10-year project was funded with a 55,000,000.00€ grant.
On 19th December 2019, ACC received the first tranche (5.100.000,00€) from the Italian Ministry of Health.

Abstract: The objective of this project is the acceleration of the transition to Precision and Personalized Medicine in Italy through the creation of a technological platform that allows the collection, sharing and analysis of clinical and scientific data of patients from each IRCCS (Health Big Data).
The project foresees the creation or enhancement of:

  • a set of IT platforms hosted at each of the participating IRCCSs to ensure extraction, integration and interoperability of clinical and scientific data;
  • a centralized IT platform, ensuring connectivity between the IRCCSs and advanced analysis of shared data.

The data that will be collected and shared are heterogeneous and include omics data (genomics, transcriptomics, proteomics, metabolomics), clinical data (electronic medical records and patient follow-up data), clinical imaging and radiomics data, and patients’ provided data. In the medium term, additional data from biosensors and also environmental, social and economic data will be included.
The platform should ensure connectivity between the IRCCSs participating to the project, with other non-Italian Research Institutes, with the National Health Service databases and with international public databases. It should also include structural elements that allow compliance with privacy and security regulations for sensitive patient data (GDPR).

Project coordinator: The Scientific Coordinator of the project is Prof. Ruggero De Maria Marchiano, President of ACC.

Partecipating institutions: The project is managed by the three networks of IRCCSs “Alliance Against Cancer”, “Neuroscience and Neurorehabilitation” and “Cardiology”, and is carried out in collaboration with the Politecnico di Milano, with the supervision of the Italian Ministry of Health.

Starting and ending date: The ten-year project started on December 16th 2019 and will end on December 15th 2029.